Tuesday, August 16, 2016

My Missing Piece

    The best laid plans are that, plans. Things change whether or not you are ready. I wasn't ready, Jacob wasn't ready, but we had to pickup the pieces and reevaluate what was best for Jacob. That really is the most important thing right there. Being your child's advocate is the most important thing you can do for them. Disabilities or not, you know them best.  You know what they need what their strengths and weaknesses are and you should fight for them. I see so many parents not even engaging in their children's services.  Trust me, we picked up and left one and asked for changes when we knew they were not a good match. Well it looks like we are at another turning point where that puzzle piece is changing and we need to find a better fit.
    We have decreased ABA services to make room for Jacobs schooling. He did the same school program last year, but I saw a train wreck coming two days in this year. He was so far behind and not getting the same attention towards his lessons as last year from ABA. So now he is home all morning with me doing school. Two days in and I'm happy to say its working for now. I have him enrolled in a online public/charter school. It has been great for him in so many ways. He gets the math and science he craves and breaks when needed. He gets some of his services through it as well like speech, social group and Occupational Therapy. He has made a few friends and now I see so much more time with him might be what I needed.

    I was missing him. He makes me laugh, he challenges me and makes me a better person.

Sunday, July 24, 2016


Thursday, May 12, 2016

Hen Hen

   We have added a new member to our little family this year and his name is Henry or as Jacob likes to call him "Hen Hen". With Hen Hen around things are definitely different around here some good and some bad. Jacob is finding ways to test us and see how far he can get with stuff before he is caught. The stinker knows our attention has been going towards Henry and he's banking on the extra 10 minutes he can squeeze in before bed playing the DS or grabbing that extra mini muffins pouch from the pantry while no ones looking. We have some new behaviors that have cropped up since the little guy came and we are trying to work through them. I knew there would be some transitional issues with Henry around, but its spilling over to everything from home, to dance, and now therapy. We are going to try to work though them the best we can, I know it will take time.
  Now there are moments when I see how much Henry makes Jacob pause and smile. He is not one to ask to hold him, which he has done maybe a hand full of times. But I asked him to here in this picture and as I came back into the room I caught him looking him over and kissing the top of his head. I heard him say "I love you Hen Hen" ever so quietly. I know he does love him in his own way and will be a great big brother!

Summer Break

    This is a unpublished post I was working on last summer and the same feelings have come back yet again as summer approaches:

     I miss my little man. I for years have felt like I have missed out on spending time during his preschool years until now and 4 summers worth. I don't think people realize how much time he spends in therapy. It's 40 hours a week! Its like having a job. I take him out for special occasions, family outings, and appointments, but I feel a gaping hole that  I haven't spent the time with him that I wanted too. I know it's for the best because we have been told many times early intervention is so important and insurance typically in the past starts dropping hours at this age. It is interesting that the insurance companies say he can get that at the public school system. Just so you know, they do not have ABA nor do they implement it in their program. In fact after giving them suggestions to do so in kindergarten and them not doing so we saw how that ended. It was a nightmare that I don't want to repeat.
    I hope this sacrifice is worth it. I for now have to pack in all the fun we can when he does get to be home!

I hope that I can pack in as many memories as I can in his time off in this coming summer like we did last summer as well.